Result!

Jake got the all clear! Perhaps I was wrong to be a pessimist after all!

Prof Haers had a good old look in Jake's mouth and is really pleased with the healing process, couldn't see any sort of abnormality or failed repair and has effectively signed us off until Spetmber 2010. We spoke about the sneezing and the food coming out of the nose but he said that as long as it was the sneeze that was propelling the food and not the lack of palate being in the way, it wasn't a problem. The fact is that he only had the operation 5 weeks ago and so things are still healing, repairing etc and therefore it is likely that his food will be irritating him a bit, hence the sneezing. It's been a while since food came out of my nose but I remember a good sneeze is what caused it.

So it seems that we're genuinely at the end of the significant part of the surgery process and the next one won't be for at least 7 years, which is very long time away.

We have to keep his teeth as clean as possible with regular (free of charge) dentist check ups which is just the same for any other kid. Also we'll be seeing more of the speech therapist starting in around 6 months time. This is another very important part of development but at least it doesn't involve a scalpel or waiting around in hospitals for days on end. Also loads of kids have speech therapy, I know of one right now who is two and hasn't spoken a word yet. He will, of course and that's what the system is there for; because we're all different and do things in our own good time.

I had Jake to myself yesterday afternoon as Clare had to work and it was good fun mucking about with him, he's becoming a real laugh. I found a spot on his shoulder blade which makes him laugh uncontrollably and exploited it to the full. He's crawling everywhere now, (although still doesn't realise how much quicker it would be on his hands and knees than dragging himself along) and I reckon he'll be walking in a couple of months. Perhaps in time for our next trip to Spain.

We're going to Spain with Sarah, Hamish and Sadie, who had her christening on Sunday and I cannot wait. It'll still be a different trip to the old holidays we had there but it's going to be nice to go a) with friends b) when the weather will be good and c) when Jake is easier to manage / transport. There'll be no sterilising, no formula, longer sleeping patterns (Sadie already sleeps until 8am) and we can all have a good laugh together.

More soon.

The moment of truth

We're off to Royal Surrey this morning to meet Piet and the team for the 6 week check up following Jake's cleft palate repair. I am convinced that some further surgery will be required but am hoping upon hope that none will be and that everything is healing nicely. Other than being what some would describe as a pessimist, but what I would describe as a realist, my reasons for thinking this are that food is still coming out of nose when he sneezes after eating and there is air escaping down through his nose.

We can't see a hole but the professor did say that Jake had a short palate when he brought the sides of it together and that he managed to lengthen it. So basically there is a bit at the back of his palate which actually wouldn't have been there if he hadn't been born with the cleft. This is the only part of the repair which is fabricated. Not fabricated in as much that anything has been added but that it has been put into a position which it has no right to be in. And therefore, perhaps this is the most likely point of failure in the whole process.

Maybe I'm worrying unduely (and I hope I am) but I like to deal in science and high percentages, I'm not reallly a gambler and err on the side of caution so, it seems to me that it's more likely than not that this is where the problem will lie, if at all.

A short palate may not mean more surgery of course, it may just need some speech therapy and coaching. In fact more surgery will only be required for developmental or social issues which a fistula (small hole) or short palate would cause. Of course, food coming out of your nose when you eat would be considered a social problem - I can't imagine the kids at his school turning a blind eye....anyway we'll see and I'll report back when we know.

On a brighter note, Jake's sleeping is getting much better. As regular readers will know, I like to moan about his sleep pattern so it's only fair to inform that he has been going through until 5.20am worse case and, like at the weekend and this morning, 7.20! That is very nearly as good as before he was born. I'm not anticipating the need for an alarm clock again just yet but it does seem that after 10.5 months of disturbed and deprived sleep we are nearly there.

Lastly, a momentus occasion last week saw Jake at a barbers having his very first haircut. Clare resisted until the last moment but when even her brother mentioned that his curls were getting out of hand, something had to give. We kept some of his mop for posterity, but here's a picture of his smart new hair cut!

Kari Callen - The next Susan Boyle?

Just seen some guys Tweeting about this. It seems the subject of cleft lips and palates are going to be getting some high profile exposure if this lady gets further in the competition.

Kari Callen was born with a bilateral (up both sides) cleft lip and palate. Hasn't done her voice any harm!

Cleft lip and palate

last one, I promise!

What is a cleft lip and palate

see below, further apologies