Here's a few recent photos
A blog about our son Jake, born in 2008 with a cleft lip and palate. I started it the day after the cleft was diagnosed and continue to write for people who turn up here every day after getting the same news. A cleft lip and palate is not the end of the world. Start at the first post and then read on...
Friday, 2 October 2009
Thursday, 1 October 2009
Another week
Just like any other I suppose, although Jake is coming along at an alarming rate. He only goes to nursery once a week but it seems to make a real difference to his development. In particular his walking and general standing. He seems much more steady when standing still and more confident going forward. Before he would start his toddle and couldn't believe his luck so whilst his brain was saying 'run' his legs were saying 'hang on...' and he would lurch forward, hopefully within adult reach. Now he is able to keep his excitement under control and walk and walk until he reaches his destination. We're not confident enough to just leaving him wandering around but it won't be long.
He also recognises the achievement we think. It would be hard not to, to be fair, given our reaction every time he completes 6 feet or so. Perhaps we should save some of the enthusiasm for other major events so he won't expect too much. He does seem genuinely happy to be walking around though and is very mobile generally now. Whether it's the proper crawling, toddling, cruising or pushing the brick trolley, he's on the move. Sitting is so last season.
A downside of this is bath time. Undoubtedly my favourite time with Jake to date has been every other or third night when it's 'bath time with Daddy'. The routine would be run bath, check temperature, add toys. Prepare Jake, let him see the water, control his excitement and then plonk him in. He'd sit up playing whilst I would shampoo his hair and apply wash to all parts above water. After more play I would lie him back, whereupon he would kick and kick until all newly exposed parts were clean and all exposed parts of bathroom and Daddy were soaking wet. He loved it, I loved it. Now however is a different story. The first part remains the same. It's when I need to clean the parts other beers can't reach that things go pear shaped. I try to lie him on his back and he does two things. The first is to lock his arms rigid against the sides of the bath and the second is to look as if the end of the world is approaching. It's a look of sheer terror, the kind you see in cartoons when the character strapped to the conveyor belt is approaching the chopping / sawing / drilling device. Given his distress I desist and stand him up to continue his ablutions. When finished he'll sit back down and instantly lurch forward onto his front. So he's lying down in the bath on his elbows and appears to be trying to swim. Manically. At first I thought he was doing it because he liked it but on inspection his expression is similar to the one previously described. So I put him back on his bottom. He then relurches, same expression. It gets to the point where I have to hold his arm to stop him drowning himself. The process is repeated until I can get the towel and haul him out. It's really annoying; what was a pleasure has become a chore in a matter of days. Evening bath routine is quite important and I guess will become more so when he has them more regularly, although by then he ought to be more able to get himself from front to back to sitting again. or perhaps he'll realise how ridiculous all the lurching is.
Anyway far too much description there, this was only meant to be a quick post. More soon...
Tuesday, 22 September 2009
Smile Train Dinner
As I mentioned yesterday we have received a very nicely put together invite package to the Smile Train 10th year celebration dinner. Personally signed by Brian, the invite explains that the organisation doesn't have much time for parties on account of how busy they are fixing the world's smiles, one at a time. And the stats prove it's true. I've mentioned on here how the Smile Train have made over half a million cleft repair operations possible in just 10 years but the most interesting fact, I believe, is this one;
"This year the Smile Train will be able to fix more clefts in India and China than the amount of babies born with one"
I had to read that a couple of times because it's hard to believe, especially when you consider than nearly 1 Chinese household in 10 is affected by a birth defect. Granted not all, or even the majority will be clefts but it's a huge number all the same. And that's just China, India will have similarly alarming figures. Plus, don't forget, the Smile Train won't just be working in these two countries; they'll be helping thousands of others in more than 75 of the world's poorest countries as well.
Anyway, back to the point, which is that in China and India, the Smile Train, after only ten years will actually be helping now to reduce the overall number of children born with clefts and people who have suffered with them all of their lives. That really is incredible in the true sense of the word. Has ever a charity after such a short period of time achieved such a massive turnaround, achieved a level of success which matches its original goals so closely? I don't know but I can't think many would have.
I don't have any hard facts to hand but can you imagine where we might be in another 10 years? There is obviously still a huge worldwide backlog but talk about 'we're getting there'. That used to be British Rail's slogan which was rightly mocked and ridiculed but here's an organisation that could absolutely claim it.
I'm sure if you talked to anyone at Smile Train and especially Brian, they'd tell you that this is still the beginning, the surface is only just scratched but in terms of stage one we must surely be approaching job done? Conceivably there could come a situation actually in our life time when globally the number of unrepaired clefts could be dwindling and when the problem becomes 'contained'. A time even when there are no unrepaired clefts left and where the only operations left to do are those we don't need yet i.e for babies yet to be born. Perhaps I'm being naive with enormous rose tinted glasses on but this is surely the original driving force and motivation behind the doctrine of the Smile Train's philosophy. This would actually mean that fewer surgeons would be needed. Ironically the more successful the Smile Train is, the smaller it could become, the polar opposite of every other aspirational, ambitious enterprise. And that must be the overall goal for every charity, to no longer be needed. The difference is this charity could achieve it, or something very close to it. I admit this is pretty flippant, to suggest that such an important organisation which has and will have done so much to no longer be needed to be around but it is a point worth making.
The final thought I have is that, whilst the stats on the 500,000 ops to date are impressive the effects must reach so much further. For every family who benefits directly by having a cleft-affected member fixed, there will be those around that family who learn and share with others. Those other people will know others affected and can pass on the word of this organisation doing good things. That will give hope and understanding. Imagine that for every operation one community learns that a) pregnant mothers ought to take follic acid where before they'd have no clue b) there's a possibility that child / adult b,c, and d in their midst may be operated on free of charge and soon, and that most importantly c) a cleft is not something to be ashamed of, it is what it is, get over it.
So when you add it all up, 500,000 is really the tip of an enormous worldwide iceberg.
Monday, 21 September 2009
Just like the old days. Sort of...
So we got back from Spain on Friday and had a really nice time. Our friends, Sarah and Hamish, along with Sadie, their beautiful seven month old baby and Sarah's dad (sorry don't know his age) had been at the villa for a week beforehand and then Sarah's father went home and we joined the three remaining Tullochs. We've been to the villa a few times with them and there are a few special moments of each day that we all remember fondly. These include the morning breakfast followed by sunbathing session, Hamish and me playing table tennis in the garage or kerbie (where you have to bounce a ball off the opposite side of the pool so you can catch the rebound, ideally without having to jump in to do so), eating at the beach and most of all, watching the sun go down with a glass or two whilst the bbq is getting up to temperature.
For the most part we got to do all of that so it felt just like the good old days. Holidaying with kids isn't so much hassle at all when you're with friends and the space to get on with it. Having the villa makes like so much easier, I think a hotel holiday is some years off for us just because of the logistics of it all. In a villa you're at home...make as much mess and noise as you want and spread out without worrying about the other guests and how pissed off they're getting.
I love the idea of going on a Mark Warner type holiday when they're older so they can meet other children in kids' clubs but for now, until they'll actually remember I can't really see the point in the extra money. Jake has less than a year of free (still £25) flying left so we need to make the most of it. He's been on six flights in his short life so far and even though he had a few moments on the way home, he was been as good as gold as we could have hoped for.
I used to get so stressed in airports to my lack of patience but now, because I know that things will be more difficult, I've chilled out a lot. Travelling with kids is basically as much hassle as you want to make it; by accepting that there's more stuff and things will take longer you can actually make it a lot easier. Getting wound up and shouting a lot (very much my previous M.O) just winds you up even more. I'm really pleased (smug even) that I've managed to calm down (with the exception of my ridiculous over charging by Ryan Air) whilst going through airports. Maybe I've matured or maybe the bastards have just ground me down.
We took Jake to the beach a couple of times, the second more successful than the first as it wasn't quite so sweltering. He could crawl along - forgot to mention that he learnt to do proper grown up hands and knees crawling while we were on holiday - almost until he was at someone else's sun lounger before we'd have to go get him. He did put his entire face in the sand at one point but this taught him that sand doesn't taste too good and tends also to block the nose.
He had a cold virtually all week but seemed in good spirits as did Sadie. They both slept well on the whole and I think the pair of them got something from spending lots of time together. I think they'll be great friends and I cannot wait to see them wanting to spend all day long on the beach while Hamish and I sit watching them all day from the bar!
I remember writing in this post about how the new Spain, i.e the one with Jake wasn't as much fun as the old Spain, the Peseta one. Well it's still not the same but then neither are any of us. In fact I don't think we'd have wanted to go to the foam party last week anyway. It was nice to wake up without a hangover (or at least with one which only lasted an hour or two) and this is basically because instead of opening bottles three and four and turning in at 3am, we were all sound asleep by midnight. It sounds sad and I do wish we were a bit crazier but when you know you're only ever a scream away from a 5am start to your day, the motivation to stay up all night tends to wane somewhat.
Anyway, it was a great trip and exactly what I needed after the weekend of drunkenness in Ibiza the week before. It's going to be brilliant to go back year after year and see how Jake's take on our favourite part of the world develops.
I'll post some photos when I get a minute.
In other news we got our official invite to the Smile Train evening whilst we were away and we're very much looking forward to it. More about that in the run up to the event.
Yesterday was also the combined NCT babies first birthday party. Time truly has flown, we've know these seven other couples for well over a year now and it feels like a lot longer in some cases. I know I've said it a few times, but it really was the best thing we could have done to find so many decent, like minded people going through the same period of their lives at the same time as us.
Lastly, and by far most importantly, our great friends Rob and Josie had their second boy pop into the world last week. So hello to George Jacobs, (already sounds like a proper, traditional English gent) and congratulations to Rob and Josie but also to Oliver who has a little brother to boss around. It looks, like predicted at their scans, that George has Down's Syndrome. More about that later as I want to learn about it, however the Jacobs' are well ready for this. Their journey, whilst certainly different to that of others at times, will be just as engaging, hard work, wonderful, emotionally draining and ultimately rewarding as any other. Good luck to them.
Tuesday, 8 September 2009
Poo Pants is 1!!!
What a difference a year makes. At 10.40am September 8th 2008, Clare was just an hour away from starting to push. We'd gone into hospital at midnight and she was about 4cm dilated and we were sent straight into the maternity room. The realisation that this was 'it' was a scary and exciting time. As Jake was on his way 2 weeks early, I was in denial right up until the ward sister told us we were in the right place and a baby was happening. I'd been convinced we would be sent on our way to sit it out. I didn't want that so I was pleased with the news.
Clare had an epidural at around 3am and for the next 9 hours we waited, got some sleep, chatted and made a few calls. I think it was midday when the midwife instructed her to start pushing. An hour and a half in I was told to get scrubbed up and into my blues as Clare was busy signing consent forms and being prepared for theatre. The ventouse was an option but they decided she was too far along and needed to conserve energy and went straight for the dreaded forceps.
I'll never forget the emotions I was feeling before Jake was born, quivering with emotion, drained and utterly worried. I hate hospitals and was concerned that things weren't going exactly according to plan. The feeling which will stay strongest with me though, was when he was pulled out and unceremoniously dangled in front of us.
'It's a boy'.
In all it's cliched glory, that phrase spouted triumphantly from me and the pair of us burst into tears while the maternity staff cleaned him up. He was given to me whilst Clare was being seen to and I sat there, Jake - even before he was Jake - cradled in my arms, staring at me and me staring back with utter wonder, exhilaration, relief and love. I remember looking right past the cleft, no longer worrying about what had been worrying us for so long, just concentrating on his beautiful little face.
UPDATE: In the last few weeks I have learned that my darling wife felt my emotional outpouring at the birth of our first child made me sound like, and I quote, 'a pansy'! I'll admit to being overwhelmed and was indeed rather tearful but I am still puzzled at this. I could have been a typical alpha male, defined by my stoicism and simply expected (and therefore got) my son and heir to pop into the world. We'd have all had a cup of tea and been home in time for bed. But, no, I cried tears of joy and relief when my son was born, yet 'er indoors thinks this makes me less of a man. Well boo to her! Women eh?
It's a real rite of passage being present at the birth of your first child. Something which changes you irreversibly forever. It'd been patronising to say it's what changes you from boy to man - many things do that - but becoming a father, for me at least, changed me in a heartbeat. I definitely recommend it, even it is the single most scary thing one can endure.
Since then a wee bit has happened. After all the sleepless nights, crying for hours on end, Clare having to endure the breast pump, the consultations, the horrible operations, I can say it's all been worth it 110% and I'd it again tomorrow.
Over the last few weeks, days even, Jake has transformed. He's like a greased weasel cruising around the lounge, he's making new babbling noises, he's had his first day at nursery and today is 1.
I went to Ibiza at the weekend for a stag do and it's the longest I've been away since he was born. I really missed him, it sounds dramatic but it almost hurt and to get back and see him and Clare yesterday was awesome, felt like a real family home coming. I was very jaded after a weekend of partying though!
So, Jake, Happy Birthday son and thanks for an incredible year - even the sleepless nights - and here's to all the exciting times ahead.
Love Daddy
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