A blog about our son Jake, born in 2008 with a cleft lip and palate. I started it the day after the cleft was diagnosed and continue to write for people who turn up here every day after getting the same news. A cleft lip and palate is not the end of the world. Start at the first post and then read on...
Wednesday 12 September 2012
Jake is 4
As these posts get fewer and further between, the less perhaps relevant they become to the people who turn up looking for information. As I wrote once before, we saw loads of photos of kids who'd been born with a cleft lip but because they were 4,5,6 or older there was no context as we were expecting a baby, not a child!
I suppose it is useful though to see how a baby with a repaired cleft turns inevitably into a child with a repaired cleft. I'd like to think I'll be doing this to the point where I can show you what a teenager and then a man looks like after having been born with a cleft.
Anyway, Jake recently underwent a very small surgery to unblock his ears and to insert grommets. This is to overcome glue ear which is very common in cleft-affected kids...whilst it was performed under general anaesthetic he was knocked out, operated on and awake again inside an hour and I can't tell you the difference it's made to him and us.
Although Jake would often ask 'what did you say?' when we'd clearly said something loudly and he'd curl his hand to make a sort of ear-horn, we really didn't grasp how bad his hearing had become. Almost instantly after coming round from the op he said how much louder and clearer everything was and was clearly very happy about it. We no longer have to call him for his tea umpteen times before getting angry at him. We feel a bit guilty about that by the way!
It's a bit of a pain as he can't get water in his ears, so we're using cotton wool until we have his ear plugs made up.
Anyway, hopefully there won't be any other operations before the one we know about when he's 8 or 9 but it's another hurdle cleared for the better.
Jake turned 4 last Saturday. which means I've been blogging about him for 4 and a half years. Where the hell did that go?!
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